I never knew

Well, its almost been a week since Adia's diagnosis... and time has effectively stopped. I remember the sight of the meter when I checked her and it was over 600... then blackout.... I remember the transfer in the ambulance to Johnson City - little Adia strapped into the gurney and asleep at 1am... I only barely remember the hospital stay - day and night blended - the occasional battle with the hospital staff (who were great, its just that a hospital is a terrible place to try to manage diabetes) - then we've been home for a few days I think. Today (and the last few days) I have been struggling with what I hope is fatigue ... I was sitting on the couch today seriously thinking that falling asleep would take too much effort. I was thinking of all the things I don't care about... milking the cow, feeding the chickens, bathing, getting off the couch....

HOWEVER, I am doing a bit better tonight. We went to the park and just being outside had the usual restorative effect. The kids played like crazy and I even was able to move around a bit. We topped it off by going to the grocery store to get a huge pack of bacon for dinner.

Adia is doing great. Her blood sugar did not go over 200 all day. Most days it is in pretty good control with the occasional spike... she is only 30 lbs which makes it touchy. She gives me all my shots and tests my blood. She doesn't like shots and finger pricks and fights them but it seems that they don't hurt her too much. She has tested her blood on her own and I wouldn't be surprised if she takes a shot on her own soon. It really seems as if its mom and dad who are having difficulty here... Adia is a pro.

I talked to my mom tonight and asked how in the world she did it... how did she and dad handle the diagnosis. she gave me lots of great insights, but the best one was that she said that she doesn't remember the initial anguish much.... Thank God... please let that be me and Ash. Its funny - controlling her blood sugar is not really a worry or anxiety for me - what is killing me is just the fact that she has diabetes. I can't imagine what parents who aren't diabetic (which is most) must go through at this time. I will be soooo much more compassionate with new diabetic parents from this point on. To think I used to say "its really no big deal" Yeah, from the patient's point of view.

Jesse Alswager's JDRF ride in Death Valley was today and amazing Michelle...on this important date for her son.... taped my daughter's diagnosis date (10-10-10) on her bike and dedicated the 10s on the ride to Adia - the 3's were for her son. Amazing. That simple act kept me from falling into full force depression I think. I don't know what plan God has, but I am thankful for the people who are in place in my life.

Well, I'd better go - Zoe is reading a couple of diabetes children's books to Adia and Ashley...

I hope and pray that the ride in Death Valley went well today.

Popular posts from this blog

1st Marathon...done

Image
Here's the lowdown on my Grandfather Mountain Marathon. I cut my lantus down to 8 units the night before and didn't take anything in the morning. I woke up and ate breakfast at 3am so I could take a full bolus. My blood sugars that day were between 140 and 100 the whole day until the night when they rose a bit. So success on the glucose front. I then woke up at 5:30 and headed over to the marathon. It was a bit unnerving as everyone I talked to seemed to be pretty experienced and when I mentioned that this was my first one, the comment was always a variation of "well, you sure picked a hard one to start with" or "well, this is the hardest road marathon in North America"... I mean, come on - that is a little discouraging. So we go down through town and pass the mall - and there is Dave. I didn't know whether he would be there but suddenly there was company. So we went along and headed uphill. Somewhere in the first 5 miles, Dave says (in typical Dave fas...
Read more

Wake or sleep

I’ve often wondered how paralysis works In my sleep. How can my soul fly And my body be dead? Infinitely better however  Than when I wake  And the two Trade  Places 
Read more

It hasn't even started yet?

I agreed to this in August of 07 and I signed up for it in September. I've been running, swimming, and biking... I'm sore and sleepy quite a lot and I am just realizing that I have not really begun to train yet... I guess I should set the stage. My name is Steve and I am a Type 1 Diabetic and have been since I was 10 (so 25 years). I've kept pretty good control (just lucky on that front - not due to excess effort) and I was always kind of active - so when my neighbor moved in (also a Type 1) and somehow talked me into being part of a group (now called Triabetes - see www.triabetes.org ) of Type 1 Diabetics that will train for and complete in the 2008 Ironman Wisonsin. I wasn't a runner, I was a terrible swimmer, and I was slow on the bike.... so I figured, "why not?" This blog will be a record of my path through this process. More to come.... as I figure out what a blog is....
Read more